A Guide to Duchenne Muscular Dystrophy

Information and Advice for Teachers and Parents
This guide provides everything teachers and parents need to know to support a child or young person with Duchenne Muscular Dystrophy (DMD) at school and home. Medical experts and practitioners working with children with Duchenne in schools give advice on learning and behavioural concerns, physical management and the transition to adulthood.

The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood.

Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.

Contributor: Janet Hoskin (Edited by), Kate Maresh (Contributions by), Francesco Muntoni (Contributions by), Veronica Hinton (Contributions by), Lianne Abbot (Contributions by), Victoria Selby (Contributions by), James Poysky (Contributions by), David Schonfeld (Contributions by), Nick Catlin (Contributions by), Celine Barry (Contributions by), Jon Hastie (Contributions by), Mark Chapman (Contributions by)

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